National Disability Organizations and Agencies

Alexander Graham Bell Association for the Deaf, 3417 Volta Place NW, Washington, DC 20007-2778, 202/337-5220 V/TTY

Alzheimer's Association, 919 North Michigan Ave., Suite 1000, Chicago, IL 60611, 312/335-8700 V, 312/335-8882, 800/272-3900

American Association of the Deaf-Blind, 814 Thayer Av., #302, Silver Spring, MD 20910, 301/588-6545 TTY only

American Association of University Affiliated Programs for Persons with Developmental Disabilities, 8630 Fenton St., #410, Silver Spring, MD 20910, 301/588-8252, 588-3319 TTY

American Association on Mental Retardation, 444 N. Capitol St., NW, #846, Washington, DC 20001-1570, 202/387-1968 V, 800/424-3688, Fax 202/387-2193

American Council of the Blind, 1155-15th St., NW, #720, Washington, DC 20005, 202/467-5081 V, 800/424-8666, Fax 202/467-5085

American Diabetes Association (ADA) (ADA), Diabetes Info Service Ctr., 1660 Duke St., Alexandria, VA 22314, 800/ADA-DISC

American Foundation for the Blind, 11 Perm Plaza, Suite 300, New York, NY 10001-2018, 212/620-2000 or 800/232-5463, 212/620-2158 TTY

American Society for Deaf Children, 2848 Arden Way, #210, Sacramento, CA 95825-1373, 916/482-0120 V/TTY, 800/942-ASDC V/TTY, Fax 916/482-0121

American Speech-Language-Hearing Association, 10801 Rockville Pike, Rockville, MD 20852, 301/897-5700;Consumer Affairs: 800/638-8255, 301/897-0157 TTY; Fax 301/571-0457

Arc of the U.S., 500 E. Border St., #300, Arlington, TX 76010; 817/261-6003, 817/277-0553 TTY, 800/433-5255, 800/277-0553 TTY, Fax 817/277-3491

Arthritis Foundation, 1330 W. Peachtree St., Atlanta, GA 30309, 404/872-7100, 800/283-7800, Fax 404/872-0457

Association of Birth Defect Children, Inc. (ABDC), 827 Irma Ave., Orlando, FL 32803, 407/245-7035 V, 800/313-2232 V, Fax 407/245-7087

Autism Society of America, Inc., 7910 Woodmont Avnue, #650, Bethesda, MD 20814, 301/657-0881 V, 800/3-AUTISM

Bazelon Center for Mental Health Law (formerly Mental Health Law Project), 1101-15th St. NW, #1212, Washington, DC 20005; 202/467-5730, 202/467-4232 TTY, Fax 223-0409

Beach Center on Families and Disability, Bureau of Child Research, University of Kansas, 3111 Haworth Hall, Lawrence, KS 66045, 913/864-7600, Fax 913/864-7605

Better Hearing Institute, Hearing Helpline, P.O. Box 1840, Washington, DC 20013, 800/327-9355, Fax 703/750-9302

Brain Injury Association, 1776 Massachusetts Ave. NW, #100, Washington, DC 20036, 202/296-6443, 800/444-6443, Fax 202/296-8850

Cancer Information Service, 800/4-CANCER

Candlelighters' Childhood Cancer Foundation, 7910 Woodmont Av., #460, Bethesda, MD 20814; 301/657-8401, 800/366-CCCF, Fax 301/718-2686

Captioned Media Program of the National Association of the Deaf

Center for Effective Collaboration and Practice, Pelavin Research Center, American Institutes for Research, 1000 Thomas Jefferson street, NW, Suite 400, Washington, DC 20007, phone: (202) 944-5433 or (888) 457-1551, fax: (202) 944-5454, email: mking@air-dc.org

Challenge (Attention Deficit Disorder Association), P.O. Box 488, West Newbury, MA 01985, 508/462-0495

Child and Adolescent Service System Program (CASSP) Nat'l Institute of Mental Health (NIMH), Parklawn Bldg., 5600 Fishers Lane, Rm. 11C-09, Rockville, MD 20857, 301/443-1333

Children and Adults with Attention Deficit Disorders (CH.A.D.D.), 8181 Professional Place, Suite 201; Landover, MD 20785; 301-306-7070; 301-306-7090 FAX

Children's Defense Fund, 25 E St. NW, Washington, DC 20001, 202/628-8787, Fax 202/662-3510

Consortium for Appropriate Dispute Resolution in Sprecial Education, 3875 Kincaid Street #18, Eugene, OR 97405, 541-686-5060 phone, 541-686-5063 fax, email: cadre@directionservice.org

Cornelia deLange Syndrome Foundation, 60 Dyer Av., Collinsville, CT 06022, 800/223-8355, Fax 203/693-6819

Council for Exceptional Children (CEC), 1920 Association Dr., Reston, VA 22091-1589, 703/620-3660, 703/264-9446 TTY, 800/328-0272, Fax 703/264-9494

Disability Rights Education and Defense Fund (DREDF), 2212-6th St., Berkeley, CA 94710, 415/644-2555

Disability Social History Project

Elementary and Middle Schools Technical Assistance Center (EMSTAC)

ERIC Clearinghouse on Adult Career & Vocational Education, 1900 Kenny Rd., Columbus, OH 43210, 614/292-4353 in OH, 800/848-4815, Fax 614/292-1260

ERIC Clearinghouse on Disability & Gifted Education, 1920 Association Dr., Reston, VA 22091, 703/620-3660 V, Fax 703/264-9494

Estate Planning for Persons with Disabilities, 2801 Hwy. 280 So., Birmingham, AL 35223-2407, 800/934-1929

Family Voices, P.O. Box 769, Algodones, NM 87001, kidshealth@familyvoices.org

Families of Spinal Muscular Atrophy, P.O. Box 196, Libertyville, IL 60048; 800/886-1762

Federation of Families for Children's Mental Health, 1021 Prince St., Alexandria, VA 22314-2971, 703/684-7710, Fax 703/836-1040

Fiesta Educativa

HEAL (Human Ecology Action League), P.O. Box 49126, Atlanta, GA 30359-1126; 404/248-1898 (for persons with environmental illnesses)

HEATH Resource Center, One Dupont Circle NW, #855, Washington, DC 20036-1110; 202/939-9320 V/TTY, 800/544-3284, Fax 833-4760 (national clearinghouse on postsecondary education for people with disabilities)

Helen Keller National Center for Deaf-Blind Youths & Adults (HKNC), 111 Middle Neck Road, Sands Point, NY 11050, 516/944-8900, 516/944-8637 TTY, Fax 516/944-7302

Human Growth Foundation, 7777 Leesburg Pike, Falls Church, VA 22043, 703/883-1773, 800/451-6434, Fax 703/883-1776

Immune Deficiency Foundation, 25 W. Chesapeake Ave. #206, Baltimore, MD 21204-4820, 410/321-6647 in MD, 800/296-4433, Fax 410/321-9165

Institute for Families of Blind Children, P.O. Box 54700, MS 111, Los Angeles, CA 90054-0700, 213/669-4649 V, Fax 666-6283

International Fibrodysplasia Ossificans Progressiva Association, P.O. Box 3578, Winter Springs, FL 32708, 407/365-4194 V/Fax

Job Accommodation Network, West Virginia University, P.O. Box 6080, 918 Chestnut Ridge Rd., #1, Morgantown, WV 26506, 800/232-9675 or 800/526-7234 V/TTY, Fax 304/293-5407

Juvenile Diabetes Foundation International (JDF), 120 Wall St., New York, NY 10005-3904, 212/785-9500, 800/223-1138 V/TTY, Fax 212/785-9595

Learning Disabilities Association of America, 4156 Library Rd., Pittsburgh, PA 15234, 412/341-1515, 341-8077 V, Fax 412-344-0224

Leukemia Society of America, 600-3rd Av., 4th flr., New York, NY 10016, 212/573-8484, Fax 212/856-9686, 800/955-4654

Lowe's Syndrome Association, 222 Lincoln St., West Lafayette, IN 47906, 317/743-3634 V

Lupus Foundation of America, Inc., 130 Piccard, Suite 200, Rockville, MD 20850, 301/670-9292 V, 800/558-0121, 301/670-9486

March of Dimes Birth Defects Foundation, 1275 Mamaroneck Av., White Plains, NY 10605, 914/428-7100 V/TTY, Fax 914/428-8203

Muscular Dystrophy Association, 3300 E. Sunrise Dr., Tucson, AZ 85718; 602/529-2000 V, 800/572-1717, Fax 602/529-5300

National Alliance for the Mentally Ill, 200 No. Glebe Rd. #1015, Arlington, VA 22203-3754, 703/524-7600 V, 703/516-7991 TTY, 800/950-NAMI, Fax 703/524-9094

National Association for Parents of Children with Visual Impairments (NAPVI), P.O. Box 317, Watertown, MA 02272, 617/972-7441, 800/562-6265, Fax 617/972-7444

National Association of Protection and Advocacy Systems, 900-2nd St. NE, #211, Washington, D.C. 20002, 202/408- 9514 V, 202/408-9521, Fax 202/408-9520

National Association of the Deaf, 814 Thayer Ave., Silver Spring, MD 20910-4500, 301/587-1788, 301/587-1789 TTY, Fax 301/587-1791

National Association of State Directors of Special Education (NASDSE), 1800 Diagonal Rd., #320, Alexandria, VA 22314-2840, 703/519-3800, 703/519-7008 TTY, Fax 703/519-3908

National Autism Hotline, P.O. Box 507, Huntington, WV 25710-0507, 304/525-8014 V, Fax 304/525-8026

National Brain Injury Research Foundation, 14408 Newton Patent Ct., Centreville, VA 22020, 703/818-0078, 800/447-8445

National Center for Clinical Infant Programs, 2000-14th Street N., #380, Arlington, VA 22201, 703/528-4300, 703/528-0419 TTY, Fax 703/528-6848

National Center for Education in Maternal & Child Health, 2200-15th St. N., #701, Arlington, VA 22201, 703/524-7802 V, Fax 703/52-9335

National Center for Law and the Deaf, 800 Florida Av. NE, Washington, DC 20002, 202/651-5454 TTY

National Center for Stuttering, 200 E. 33rd St., #17C, New York, NY 10016, 800/221-2483, Fax 212/683-1372 National Center for the Study of Postsecondary Educational Supports, Rehabilitation Research & Training Center (RRTC), University of Hawai'i at Manoa, 1776 University Avenue, UA 4-6, Honolulu, HI, 96822, email: CDS@hawaii.edu.

National Chronic Pain Outreach Association (NCPOA), 7979 Old Georgetown Rd., #100, Bethesda, MD 20814, 301/652-4948 V, Fax 301/907-0745

National Clearinghouse on Family Support and Children's Mental Health, Portland State University, P.O. Box 751, Portland, OR 97207-0751, 800/628-1696, 503/725-4165 TTY

National Coalition on Deaf-Blindness, 175 North Beach St., Watertown, MA 02172, 617/972-7347

National Council on Disability, 800 Independence Av. SW, #814, Washington, DC 20591, 202/267-3846, 202/267-3846 TTY

National Cystic Fibrosis Foundation, 6931 Arlington Rd., Bethesda, MD 20814, 301/951-4422 V/TTY, 800/344-4823 V/TTY, Fax 301/951-6378

National Deaf Education Network and Clearinghouse, Gallaudet University, 800 Florida Av. NE, Washington, D.C. 20002-3625, 202/651-5051, 202/651-5052 TTY, Fax 202/651-5054

National Diabetes Information Clearinghouse (NDIC), 1 Information Way, Bethesda, MD 20892-3560, 301/654-3327 V, 301/657-2172 TTY

National Down Syndrome Congress, 7000 Dunwoody Road, Building #5, Suite 100, Atlanta, GA 30328-1662, 770-604-9500 V, 800-232-NDSC V, Fax 770-604-9898

National Down Syndrome Society, 666 Broadway, #810, New York, NY 10012-2317, 212/460-9330 V, 800/221-4602, Fax 212/979-2873

National Early Childhood Technical Assistance System (NEC*TAS), 137 E. Franklin St., 500 Nation's Bank Plaza, Chapel Hill, NC 27514, 919/962-2001 V, 919/966-4041 TTY, Fax 919/966-7463

National Easter Seal Society, 230 W. Monroe, #1800, Chicago, IL 60606, 312/726-6200, 726-4258 TTY, 800/221-6827, Fax 312/726-1494

National Fragile X Foundation, 1441 York St., #303, Denver, CO 80206, 303/333-6155, 800/688-8765

National Health Information Center (Office of Disease Prevention and Health Promotion), P.O. Box 1133, Washington, DC 20013-1133, 800/336-4797

National Hearing Aid Society, 20361 Middle Belt Rd., Livonia, MI 48152, 810/478-2610, 800/521-5247, Fax 810/478-4520

National Information Center for Children and Youth with Disabilities (NICHCY), Mailing Address: P.O. Box 1492, Washington, DC 20013, 202/884-8200 V/TTY, 800/695-0285 V/TTY, Fax 202/884-8441

National Information Clearinghouse for Infants with Disabilities and Life-Threatening Conditions, CDD/USC, Benson Bldg., 1st Flr., Columbia, SC 29208, 803/777-4435, 803/777-7826 TTY, 800/922-9234, Fax 803/777-6058

National Institute on Disability and Rehabilitation Research (NIDRR), Department of Education, 600 Independent Ave. SW, Washington, DC 20202-2572, 202/205-8134 V, 202/205-9136 TTY, Fax 202/205-8515

National Library Service for the Blind and Physically Handicapped, Library of Congress, 1291 Taylor St. NW, Washington, DC 20542, 202/707-5100 V, 707-0744 TTY, 800/424-8567 V/TTY, Fax 202/707-0712

National Mental Health Association, 1021 Prince St., Alexandria, VA 22314-2971, 703/684-7722, 800/969-6642

National Multiple Sclerosis Society, 733-3rd Av., New York, NY 10017, 212/986-3240, 800/344-4867, Fax 212/986-7981

National Organization for Albinism & Hypopigmentation, 1500 Locust St., #1816, Philadelphia, PA 19102, 215/545-2322

National Organization for Rare Disorders (NORD), P.O. Box 8923, New Fairfield, CT 06812, 203/746-6518, 202/746-6927 TTY, 800/999-NORD V, Fax 203/746-6481

National Organization of Parents of Blind Children

National Organization on Disability, 910-16th St. NW, #600, Washington, DC 20006, 202/293-5960, 202/293-5968 TTY, Fax 202/293-7999

National Parent Network on Disabilities,

National Rehabilitation Information Center, 8455 Colesville Rd., #935, Silver Spring, MD 20910-3319, 301/588-9284 V, 301/495-5626 TTY, 800/346-2742, Fax 301/587-1967

National Retinitis Pigmentosa Foundation, Inc., 11350 McCormick Rd., #800, Hunt Valley, MD 21031-1002, 800/638-5683 TTY

National Spinal Cord Injury Association, 8300 Colesville Rd., Suite 5515, Silver Springs, MD 20910, 301/588-6959 V, 800/962-9629, Fax 301/588-9414

National Tuberous Sclerosis Association, 8181 Professional Place, Suite 110, Landover, MD 20785, 300/459-9888 V, 800/225-NTSA, Fax 301/459-0394

Office for Civil Rights National Office, Department of Education, Rm. 5000, Switzer Bldg., 400 Maryland Av. SW, Washington, DC 20202

Office of Civil Rights, Region 5, Department of Education, 111 No. Canal Street, Suite 1053, Chicago, IL 60606, 312/886-8438 (region covering Minnesota)

Office of Special Education Programs (OSEP), Switzer Bldg., 400 Maryland Av. SW, Stop 2651, Washington, DC 20202-2651, 202/205-5507 V, Fax 202/260-0416

Office of Special Education & Rehabilitative Services (OSERS), Rm. 3006 Switzer Bldg., 330 C St. SW, Washington, DC 20202-2500, 202/205-5465 V/TTY, Fax 202/205-9252

Orton Society, 8600 LaSalle Rd., Chester Bldg., #382, Baltimore, MD 21286-2044, 301/296-0232 (dyslexia)

Osteogenesis Imperfecta Foundation, Inc., P.O. Box 24776, Tampa, FL 33623-4776, 813/855-7077

People First, Inc., 800/433-5255 (self-advocacy group) Positive Behavioral Interventions & Supports

Prader-Willi Syndrome Association, 2510 S. Brentwood Blvd., #220, St. Louis, MO 63144, 314/962-7644, 800/926-4797, Fax 314/962-7869

Presidential Task Force on the Employment of Adults with Disabilities

Protection and Advocacy for Mentally Ill Program (PAMI), National Institute of Mental Health, Rm. 15C-21, 5600 Fishers Lane, Rockville, MD 20857, 301/443-3667, Fax 301/443-7926

Resource Access Project (RAP), Univ. of Illinois, Dept. of Spec. Ed., 403 E. Healey, Champaign, IL 61820, 217/333-3876, Fax 217/333-4293

Rural Institute on Disabilities, University of Montana, 52 Corbin Hall, Missoula, MT 59812, (406) 243-5467 Voice/TT, (406) 243-4730 Fax, (800) 732-0323 Toll-Free, email: muarid@selway.umt.edu

Schools Are For Everyone (SAFE), 7800 Shoal Creek Blvd., #171-E, Austin, TX 78757

Self-Help for Hard of Hearing People, Inc., 7910 Woodmont Av., #1200, Bethesda, MD 20814, 301/657-2248, 657-2249 TTY, Fax 301/913-9413

Short Stature Foundation (formerly Little People of America), P.O. Box 9897, Washington, DC 20016, 800/24DWARF

Sick Kids Need Involved People, Inc. (SKIP), 216 Newport Dr., Severna Park, MD 21146

Spina Bifida Association of America, 4590 MacArthur Blvd. NW, Suite 250, Washington, D.C. 20007, 202/944-3285, 800/621-3141, Fax 202/944-3295

National Center for Research in Vocational Education, University of Illinois, Rm. 345 Education Building, 1310 S. Sixth St., Champaign, IL 61820, 217/333-2609 V/TTY, Fax 217/244-5632

Technical Assistance Alliance for Parent Programs, c/o PACER Center, 8161 Normandale Blvd, Bloomington, MN 55437-1044; 1-888-248-0822 V/TTY, Fax 952-838-9000.

Technical Assistance on Training about the Rehabilitation Act (TATRA), c/o PACER Center, 8161 Normandale Blvd, Bloomington, MN 55437-1044; 952-838-9000 V/TTY, 800/53PACER (for parents in greater Minnesota), Fax 952-838-0199

TASH, 29 W. Susquehanna Ave., Suite 210, Baltimore, MD 21204, 410/828-1306 V/TTY, 800/482-TASH, Fax 410/828-6706

United Cerebral Palsy Association, 1522 K St., NW, #1112, Washington, D.C. 20005, 202/842-1266 V/TTY, 800/872-5827 Very Special Arts, 1300 Connecticut Ave. VW, Suite 700, Washington, DC 20036, 202-628-2800, ext. 706 V, 202-737-0645 TTY, 800-933-8721, Fax 202-737-0725

Williams Syndrome Association, P.O. Box 297, Clawson, MI 48017, 810/541-3630