Dorothy Wollen commented on Tell Us Your Story 2021-10-01 08:07:27 -0700My daughter was diagnosed with autism spectrum disorder last year at the age of 47. The professional who diagnosed her did not follow through with treatment and support as she promised. We had searched a long time for testing for someone her age so my daughter felt let down and was very upset. Every organization I contact refers me to someone else. There is a long wait to learn if she qualifies as developmentally disabled and there doesn’t seem to be any help or support in the meantime. My daughter had cancer surgery six years ago and has three autoimmune illnesses, PTSD, and chronic insomnia from anxiety. We have no relatives nearby to rely on. I am fairly healthy but at the present time, if something should happen to me, she would have no one to turn to.
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The Arc of Nebraska has been working for over 60 years to ensure that people with developmental and intellectual disabilities can live in the community. Previously, the status quo was that people were forcefully segregated into isolation in institutions. Now 2,332 people qualify for services under the developmental disabilities services waiver but are not receiving funding. They instead have been forced onto a waiting list that could require them to wait for years to access vital services.
Over a decade ago the LR 156 report said, “Nebraska is at a crossroads with its obligation to Nebraska citizens with developmental disabilities. Several Nebraska Senators have recognized the urgent need to develop a strategic plan to address the current and future needs of citizens with DD and their families.” It seems that we have still failed to take the sort of serious action needed to help people with disabilities. It’s time to ensure that we fully fund the waiting list.
(Sign Petition Below)1,582 signatures
We the people of Nebraska believe that it is our legal, ethical, and moral duty to ensure that people with disabilities are properly served. Too long have our good neighbors struggled to care for their children, siblings, church members, employees, friends, and community members due to improper funding of the Developmental Disabilities Services Waiver. We as Nebraskans want to ensure that people with disabilities receive the services that they need in a thoughtful and comprehensive approach that allows them to live full lives in the community.
We must take action to provide full and proper funding to eliminate the waiting list.