Whereas, Governor Ricketts removed people with underlying conditions from the 1B Priority Group for the Covid Vaccine
Whereas, If infected, people with Down Syndrome are five times more likely to be hospitalized and 10 times more likely to die than the general population,
Whereas, 83% of people with intellectual or developmental disabilities are not receiving state services and part of the groups of people with disabilities that have not yet received the Covid Vaccine.
Whereas, Nebraska’s service system fails to recognize many people intellectual and developmental disabilities.994 signatures
Therefore, we call on Governor Ricketts to add people with disabilities back to the Priority Group for Covid Vaccines. We must provide equitable access to testing for those in communities, in facilities, in services, and supported by their families. In order to ensure this, we must eliminate barriers including but not limited to lack of access to transportation, limitations of vehicles, ensure quality testing in community services, provide testing in facilities, make the website accessible, create a comprehensive data set involving all people, and ensure equitable care for all Nebraskans.
Anne Ireland donated 2021-01-25 10:02:56 -0800
Whereas, people with disabilities are discriminated against throughout society.
Whereas, Test Nebraska has failed to properly consider people with disabilities.
Whereas, those with limited access to transportation have difficulty accessing testing.
Whereas, there is a lack of testing for those in community-based services.
Whereas, the testing process and data has not been transparent.
Whereas, it is crucial to ensure that people with disabilities are offered the equal protection of testing and ensure that our datasets include all members of the community.
Whereas, we have seen significant spikes across the world in facilities.
Whereas, Beatrice State Developmental Center has failed to provide a plan to ensure that people with disabilities under state care have proper access to testing.
Whereas, settings like nursing homes are in particular danger of high levels of infection.
Whereas, there are serious concerns that have remained not addressed regarding people with disabilities.283 signatures
Therefore, we, the undersigned call upon Governor Ricketts and Nebraska Department of Health and Human Services to ensure updates and modifications to the Test Nebraska Program that will protect people with disabilities. We must provide equitable access to testing for those in communities, in facilities, in services, and supported by their families. In order to ensure this, we must eliminate barriers including but not limited to lack of access to transportation, limitations of vehicles, ensure quality testing in community services, provide testing in facilities, make the website accessible, create a comprehensive data set involving all people, and ensure equitable care for all Nebraskans.
The Arc of Nebraska has been working for over 60 years to ensure that people with developmental and intellectual disabilities can live in the community. Previously, the status quo was that people were forcefully segregated into isolation in institutions. Now 2,332 people qualify for services under the developmental disabilities services waiver but are not receiving funding. They instead have been forced onto a waiting list that could require them to wait for years to access vital services.
Over a decade ago the LR 156 report said, “Nebraska is at a crossroads with its obligation to Nebraska citizens with developmental disabilities. Several Nebraska Senators have recognized the urgent need to develop a strategic plan to address the current and future needs of citizens with DD and their families.” It seems that we have still failed to take the sort of serious action needed to help people with disabilities. It’s time to ensure that we fully fund the waiting list.
(Sign Petition Below)1,576 signatures
We the people of Nebraska believe that it is our legal, ethical, and moral duty to ensure that people with disabilities are properly served. Too long have our good neighbors struggled to care for their children, siblings, church members, employees, friends, and community members due to improper funding of the Developmental Disabilities Services Waiver. We as Nebraskans want to ensure that people with disabilities receive the services that they need in a thoughtful and comprehensive approach that allows them to live full lives in the community.
We must take action to provide full and proper funding to eliminate the waiting list.
Anne Ireland commented on Tell Us Your Story 2018-11-29 13:39:41 -0800My name is Anne M. Ireland. My partner Keith and I have a 4 year old son, Kepler. We were pregnant with Kepler when I was 43 years old.
We raise Kepler to be open and accepting of himself as well as others, to be honest, be respectful and to have fun in his life.
When Keith and I met, we right away talked about having children. Because of my disability, which is cerebral palsy. If we do get legally married, then I lose SSDI and all or part of my benefits.
I’m 48 now and we been trying to have another child, because we would like Kepler to have a little brother or sister, also we just would like to have another baby.
Keith and I really would like to be able to adopt a new born baby. I called someone from a home society and when I told them that Keith and I weren’t married, the conversation was done. The person didn’t want to hear anymore. I think that our way, among other people’s way’s should all be considered and worked out as a individual bases, because everyone’s situation is different. If we could afford me getting off of my SSDI and if it didn’t matter if I had benefits or not, Keith and I would be married legally…
It is hard for people with disabilities to do anything, little long, say that you want to get pregnant, adopt, or which ever you want to have a child, go though the process, and finally have a baby. This is because people with disabilities don’t have the support they should have, when going through the process of having a baby. When people with disabilities say they would like to have a baby, instead of getting the ooooo’s and awww’s, congratulations, and the "let us know.” Instead they’re more likely to get “now, come on, you don’t want that”, “you better be careful, now”, or that’s a lot for you to handle". I know this because, it happened to me before, while, and after I was pregnant. This is one of the reasons why I and maybe other people with disabilities have trouble with communicating and socializing with family, friends, medical professionals, staff, co-workers, neighbors, ect. I do know that it doesn’t look like “Anne has trouble with communicating or socializing”, and I do get “the point” across… But it is hard, because I’m so use to people not listing to me, not supporting, and putting down my ideas.
I know that our family are meant to have another family member in our family and I’m trying to do everything to let that happen. Thank you for taking your time to read this.
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