Sue Rood

  • signed Family Support Waiver Petition 2021-05-24 15:13:14 -0700

    Family Support Waiver Petition

    Last week LB 376 The Family Support Waiver was filibustered in part on the urging of Governor Ricketts.  This bill would have helped 850 children with intellectual and developmental disabilities be taken off the Developmental Disabilities Wait List with over 3000 people waiting for services 6-8 years.  This waiver was designed in a well-researched targeted way to help make sure the state would significantly improve its cost-efficiency and get more children the services they actually need. 

    The Arc of Nebraska has been working for over 60 years to ensure that people with developmental and intellectual disabilities can live in the community.  Previously, the status quo was that people were forcefully segregated into isolation in institutions.  Now 2,332 people qualify for services under the developmental disabilities services waiver but are not receiving funding.  They instead have been forced onto a waiting list that could require them to wait for years to access vital services.

    Over a decade ago the LR 156 report said, “Nebraska is at a crossroads with its obligation to Nebraska citizens with developmental disabilities. Several Nebraska Senators have recognized the urgent need to develop a strategic plan to address the current and future needs of citizens with DD and their families.” It seems that we have still failed to take the sort of serious action needed to help people with disabilities.  It’s time to ensure that we fully fund the waiting list.

    (Sign Petition Below)

    1,280 signatures

    We, the people of Nebraska, believe that our legal, ethical, and moral duty is to ensure that people with disabilities are properly served.  Too long have our good neighbors struggled to care for their children, siblings, church members, employees, friends, and community members due to improper funding of the Developmental Disabilities Services Waiver.  We, as Nebraskans, want to ensure that people with disabilities receive the services they need in a thoughtful and comprehensive approach that allows them to live full lives in the community.  Ensuring people with disabilities access to the services they need is our top priority, and as our representatives, we ask that you make it yours. 

    Therefore, we call on Governor Ricketts, Division of Developmental Disabilities Director Green, and the Senators who voted against LB 376 to:

    1 Fully support and sign on to LR 239.  Including attending hearings, responding to citizen feedback, and engaging in community conversations (including with people with disabilities, families, providers, and organizations that represent people with disabilities)

    2 Come forward with policy alternatives in collaboration with disability community leaders to End the Wait List in 5 years.

    3 Propose policy alternatives to ensure that we deal with the cracks in our system so that everyone with an intellectual or developmental disability can access the supports they need.

    4 Spend a day with one of the families this would have affected to understand their struggle.

    We must take action to provide full and proper funding to eliminate the waiting list.

    Add signature

  • signed End The Waiting List Petition 2019-07-10 16:36:35 -0700

    End The Waiting List Petition

    The Arc of Nebraska has been working for over 60 years to ensure that people with developmental and intellectual disabilities can live in the community.  Previously, the status quo was that people were forcefully segregated into isolation in institutions.  Now 2,332 people qualify for services under the developmental disabilities services waiver but are not receiving funding.  They instead have been forced onto a waiting list that could require them to wait for years to access vital services.

    Over a decade ago the LR 156 report said, “Nebraska is at a crossroads with its obligation to Nebraska citizens with developmental disabilities. Several Nebraska Senators have recognized the urgent need to develop a strategic plan to address the current and future needs of citizens with DD and their families.” It seems that we have still failed to take the sort of serious action needed to help people with disabilities.  It’s time to ensure that we fully fund the waiting list.

    (Sign Petition Below)

    1,577 signatures

    We the people of Nebraska believe that it is our legal, ethical, and moral duty to ensure that people with disabilities are properly served.  Too long have our good neighbors struggled to care for their children, siblings, church members, employees, friends, and community members due to improper funding of the Developmental Disabilities Services Waiver.  We as Nebraskans want to ensure that people with disabilities receive the services that they need in a thoughtful and comprehensive approach that allows them to live full lives in the community.

    We must take action to provide full and proper funding to eliminate the waiting list.

    Add signature

  • signed Protect Federal Disability Funding 2019-04-01 19:14:08 -0700

    Protect Federal Disability Funding

    We heard this week that the funds for Special Olympics will be protected but we are still concerned by the cuts to other federal disability programs.  These cuts listed below would be detrimental to Nebraskans with disabilities.  We urge you to oppose these cuts.  Please sign the petition below to express your disappointment in the proposed budget to your representatives.

    Amounts in $ millions   FY 19  FY 20 President's Budget % Change from 2019
    Department of Labor        
    Workforce Innovation and Opportunity Act programs        
         Adult Employment   846 846 0.0%
         Youth Activities   903 903 0.0%
    Office of Disability Employment Policy   38 27 -29.3%
    Department of Health and Human Services      
    Health Resources & Services Administration        
    Maternal & Child Health Block Grant   678 661 -2.5%
    Autism and Other Developmental Disorders   51 0 -100.0%
    Administration for Community Living        
    Developmental Disabilities (DD) Act Programs:        
            Basic State Grant   76 56 -26.3%
            Protection & Advocacy Systems for DD   41 39 -4.9%
            University Centers for Excellence in DD   41 33 -19.5%
            Projects of National Significance   12 1 -91.7%
    Independent Living program   116 109 -6.0%
    Lifespan Respite Care Act   4 3 -25.0%
    National Family Caregiver Support Program   181 151 -16.6%
    State Grants to Remove Barriers to Voting   7 5 -28.6%
    State Assistive Technology Programs & TA   36 32 -11.1%
    Centers for Disease Control and Prevention        
    Birth Defects, Dev. Disabilities, & Health   156 112 -28.2%
    Administration for Children and Families        
    Social Services Block Grant   1,700 487 -71.4%
    Department of Education        
    Individuals with Disabilities Education Act (IDEA)        
     State Grants Part B   12,364 12,364 0.0%
     Preschool Grants   391 391 0.0%
     Early Intervention Part C   470 470 0.0%
          State Personnel Development   39 39 0.0%
          Technical Assistance and Dissemination   62 44 -28.4%
          Personnel Preparation   87 87 0.0%
          Parent Information Centers   27 27 0.0%
          Technology and Media   28 28 0.0%
    Rehabilitation Services Administration        
    Vocational Rehabilitation State Grant   3,522 3,610 2.5%
    Client Assistance Programs   13 13 0.0%
    Rehabilitation Training   29 29 0.0%
    Demonstration and Training Programs   6 6 0.0%
    Protection & Advocacy for Individual Rights   18 18 0.0%
    Supported Employment State Grant   23 0 -100.0%
    Higher Education        
    Postsecondary Programs for Students with ID (TPSID)   12 12 0.0%
    104 signatures

    We urge you to help protect disability services by protecting Nebraskans from the cuts in the proposed federal budget.  These cuts include:

    1 Drastic cuts to Medicaid that will endanger the lives of people with developmental disabilities.

    2 Cuts to our friends at Nebraska Planning Council on Developmental Disabilities

    3 Removal of funding for independent living programs

    4 Lowering funds for respite care services

    5 Cutting a $51 million initiative to address autism and other developmental disorders.

    6 The lack of a cost of living adjustment for Special Education Funding which is basically a cut

    Add signature

  • commented on Contact Us 2018-01-29 07:57:44 -0800
    We have been members of ARC of Ne for sometime. However, we have not been involved for various reasons. Now we find that we can help out. We went to the hearing at the capitol last Thursday for the first time. I just purchased tickets for the legislative dinner which we have never attended. I saw the schedule for the day but I don’t know where this all takes place? Please advise.

    Contact Us

    Please feel free to contact us through this form, by email at [email protected], or by phone at 4024754407.  Thank you!

    Send feedback