Emergency Alert- Share of Cost!!!


We have been diligently working to protect families of individuals with intellectual and developmental disabilities from Share of Cost Assessments. We helped many families avoid the cost administratively. However, some were still being charged improperly. So we helped fund a court case to work to overturn these decisions. Then we won the case!


However, now the department is coming back to change the section of regulations so that they can charge a Share of Cost. This decison could re-expand the people who could have Share of Cost Assessments applied. We are still assessing the impacts of these modifications, however, were just alerted to the hearing tomorrow morning at 10 am. Please come to the hearing or email comments ASAP.


September 25, 2019, 10:00 am Central Time Gold’s Building - Room 534 1033 O Street, Lincoln, Nebraska

If you can’t make it, then please email [email protected]





If you can’t make it, then please email [email protected]



Sample Letter,


I am writing concerning the hearing for October 25 at 10 am regarding Title 477, Chapter 22 of the Nebraska Administrative Code (NAC). I am concerned that this will force renewed Share of Cost Assessments. In particular, section 005.02(K)(ii)(2) DISABLED ADULT CHILDREN (DAC). "This population is also known as childhood disability beneficiaries (CDB). The amount or increase in Title II benefits received from a parent’s claim is not counted if all of the following are met: 

  1. (a) Lost Supplemental Security Income (SSI) status after November 10, 1986 due to the mandatory receipt or increase in Title II benefits on a parent’s record due to the retirement, death, or disability of the parent; 
  2. (b) Are age 18 or older; 
  3. (c) Blindness or disability began before age 22; and 
  4. (d) Would continue to be eligible for a Supplemental Security Income (SSI) 

payment, including the resource standard, if they were not receiving the Title II disabled adult child benefit. "


I would urge that we do not move on implementation until we are further able to understand the implications for families. Otherwise, we may force people with disabilities to quit their jobs, place financial burdens on families, or leave individuals deep in debt that they will not be able to repay.



Edison McDonald


The Arc of Nebraska advocates with and for people with Intellectual/Developmental Disabilities to have full inclusion into their communities.